I have an incurable illness

[Bonk]

Asalamulaikum brothers and sisters.

From an early age, I have suffered from bad body odour... Not because of bad hygiene, because of what I am diagnosed with today.. Called TMAU (fish odour syndrome) basically, I stink of rotten fish, garbage, faces, horse manure and everything so guy wrenching and sickening.

I have been bullied immensely because of it. Emotionally, mentally, physically and also sexually. These made and make me feel worthless, non worthy of existence, dirty, disheartened, degraded etc etc. People don't want to know me. Everyone hates me because of this, even my own family feel disgust around me because of my odour.

I am a Muslima Alhamdulillah but I do not pray or read Quran Astagfirullah.. Not because I don't want to, laziness is one but mainly because I feel inpure and bowing down to the most high in a state of uncleanliness is something I can't do.

I have doubts and many times ask Allah "why me", "why other people don't have this".. Btw 1 in a 1,000 people have this metabolic odour and it can only be managed by diet. Which I have tried but has not worked only resulting in me finding more ways to deal with the disappointment.. Any whoo, I doubt Allah and I cry, I may have gotten use to it but living with this is so hard. I can't even stand outside without getting a disgust look from a stranger, it has ruined my life yet I live and try getting out more.

does Allah love me?
Why have I got such a disgusting illness? (Alhamdulillah it's not cancer) but it's killing me still..
Do I deserve this?
Is Allah punishing me for something I did?
Will it ever go?
I can't seem to live anymore.. I got so much other problems too (like I've mentioned in my other thread)... Along with that I am not pretty and overweight...

Why is Allah testing me this way, I have no good, I am hideous, I am easily avoidable, have no one (friends or family) who love me dearly (with all the love I give and have to give) I can't socialise, can't go out, can't even smile because it's hard to with people constantly hating on me becaus of something I can't control.

I can't kill myself or harm myself but other people can with their words, them hitting me, pushing me around or spitting on me like I'm a filthy animal, mentally killing me, people are the worst. I can't live like this...

How can I get such a life and others get at least some kind of good, if not, everything (like everyone I know or see [yes I know they are going through hardship bla bla]but they still got everything and no one wanting them to die)

How'd I go living like this anymore? Please tell me?

thank you :)

[Misbah0411]

Never heard of it before until now. I found this on Wiki. Have you tried these other methods:

Ways of reducing the fishy odor may include:

• Avoiding foods such as egg yolks, legumes, red meats, fish, beans and other foods that contain choline, carnitine, nitrogen, sulfur and lecithin
• Taking low doses of antibiotics such as neomycin and metronidazole^[8] in order to reduce the amount of bacteria in the gut
• Using slightly acidic detergent with a pH between 5.5 and 6.5

Additionally, at least one study^[9] has suggested that daily intake of the supplements activated charcoal and copper chlorophyllin may improve the quality of life of individuals afflicted with TMAU by helping their bodies to oxidize and convert TMA to the odorless N-oxide (TMAO) metabolite. Study participants experienced subjective reduction in odor as well as objective reduction in TMA and increase in TMAO concentration measured in their urine. The study found that:

• 85% of test participants experienced complete loss of detectable "fishy" odor
• 10% experienced some reduction in detectable odor
• 5% did not experience any detectable odor reduction

May Allah Azza wa Jal give you relief from TMAU. May He strengthen your resolve.

[Muslim Woman]

:sl:

May Allah grants you shefa. Start praying
Daily salat. Remember , life is a test
for hereafter.

[*charisma*]

Assalamu Alaikum

A'udhubillah, you shouldn't think this way. Your cure is in the hands of Allah subhanahu wa ta'ala and instead of moving away you should move closer to Him. People have suffered "incurable" diseases, are told they are going to die within weeks, and subhanallah miracles happen. Your faith should not be this low. Sweat is not impure, so you can pray. The fact that you allow yourself to feel too dirty to worship Allah is just the whispers of shaytan getting to you. There is no struggle a muslim goes through without being rewarded for it. I think most of your depression comes from being bullied. It is cruel how people are treating you, but you can be stronger than this inshallah. Do not think so lowly of yourself. If you don't have confidence, are unhappy, and cannot defend yourself, then you are allowing others to put you down as well and that's what they will do. Don't think that beauty is only physical, it's not. I can feel repulsed by someone who is mopey and has no self worth more than any "ugly" person I see. If you want to be happy, count your blessings, say Alhemdulilah and move from there, because really, nothing is holding you back from being the best version of yourself. You have two eyes to see, working hands and feet, your health, a sound mind, and a roof over your head, and even more than this.. and that's more than what a lot of others can say.

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[muslimah_B]

Asalamulaikum brothers and sisters.

From an early age, I have suffered from bad body odour... Not because of bad hygiene, because of what I am diagnosed with today.. Called TMAU (fish odour syndrome) basically, I stink of rotten fish, garbage, faces, horse manure and everything so guy wrenching and sickening.

I have been bullied immensely because of it. Emotionally, mentally, physically and also sexually. These made and make me feel worthless, non worthy of existence, dirty, disheartened, degraded etc etc. People don't want to know me. Everyone hates me because of this, even my own family feel disgust around me because of my odour.

I am a Muslima Alhamdulillah but I do not pray or read Quran Astagfirullah.. Not because I don't want to, laziness is one but mainly because I feel inpure and bowing down to the most high in a state of uncleanliness is something I can't do.

I have doubts and many times ask Allah "why me", "why other people don't have this".. Btw 1 in a 1,000 people have this metabolic odour and it can only be managed by diet. Which I have tried but has not worked only resulting in me finding more ways to deal with the disappointment.. Any whoo, I doubt Allah and I cry, I may have gotten use to it but living with this is so hard. I can't even stand outside without getting a disgust look from a stranger, it has ruined my life yet I live and try getting out more.

does Allah love me?
Why have I got such a disgusting illness? (Alhamdulillah it's not cancer) but it's killing me still..
Do I deserve this?
Is Allah punishing me for something I did?
Will it ever go?
I can't seem to live anymore.. I got so much other problems too (like I've mentioned in my other thread)... Along with that I am not pretty and overweight...

Why is Allah testing me this way, I have no good, I am hideous, I am easily avoidable, have no one (friends or family) who love me dearly (with all the love I give and have to give) I can't socialise, can't go out, can't even smile because it's hard to with people constantly hating on me becaus of something I can't control.

I can't kill myself or harm myself but other people can with their words, them hitting me, pushing me around or spitting on me like I'm a filthy animal, mentally killing me, people are the worst. I can't live like this...

How can I get such a life and others get at least some kind of good, if not, everything (like everyone I know or see [yes I know they are going through hardship bla bla]but they still got everything and no one wanting them to die)

How'd I go living like this anymore? Please tell me?

thank you :)

Walaykum asalam

Everything is in Allah hands, any disease is curable by Allah,
By turning away from Allah your making yourself feel worse emotionally and mentally which then allows shaytan to come to you and make everything be 1000 times worse than what it really is.

Have you gone to another doctor for a different opinion... or told them its really effecting you, usually they would refer you onto a specialist in the area to see if anything can be done to prevent it or to reduce the smell produced.
Have you tried looking in forums of people with the same diagnosis as you to see, if they do anything to mask the smell or have any tips you could try in sha Allah.
Honeslty sis i bet its not as bad as you make out, i mean people are sometimes very mean for no reason

[greenhill]

I feel for you.

I read words written by a very strong person spiritually. Despite all that has happened, and alone, and physical disadvantages, I read the words of someone with clear thoughts but sad.

Even sadder, nothing will happen if left like this. Only you can make that difference. Put that mind to the body.

Use the bit of research posted earlier about diet and seriously do it.

Next, to tackle the weight issues. Get stuck in and go for it. Don't give up. That you can do.


Wishing you resolve to rebuild yourself.. ;)


:peace:

[shaz1234]

Hi I feel your pain. If you don't mind me asking how old are you?

[ReboundMuslimah]

Hi I feel your pain. If you don't mind me asking how old are you?

Edited

[muslima0987]

Asalamulaikum sister,
I am muslima and have the same problem.
I have learn from the past that Allah is Allwise and He know what is best for us. In my situation if I had didnt tmau maybe I was not a muslima today but a kuffar, because this tmau has brought me far away from sinning and acting like kuffars. Because nobody likes you because of your smell. I had a verry difficult past, not only I have tmau but when I was in my twentys I had whispers from the sayatan and when I began to pray because of the whispers I had ocd. I had a verry difficult past because I had more problems than I will share. But I have allways believed in Allah and Mohammed Rasoerallah. Today I didnt care much about my tmau but I live a happy life but sometimes it makes me cry and I am allways insecure. But better insecure than a arrogant worshipper and Allah knows best.

[12rahmai]

Basically yeah to cut all the nonsense sorry to hear this I know people say they know what you're going through but they really don't. Just read this article and perhaps contact the doctors who wrote the article. It talks about how a person on the verge of death was able to overcome this problem (both depression and tmau) and is now looking for a husband. Hope this helps. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4040069/

A rare case of fish odor syndrome presenting as depression ...

[ahmed.younes]

Sister I don't think Allah is picking on you. Nauthubillah. It is a test, but everyone is different. I know for fact that everyone has faced different trails, on one level or another, each according to persons capabilities. Anyway just fear Allah and Allah will make a way out for you inshallah

[HisServant]

Assalaamu Alaikum,

I am sorry to read about your struggles, May Allah make it easy, cure you completely and give success. Ameen

Will put forward some advises which I believe may be helpful but would be subjected to trial. I am not a doctor and have not studied medicine, however the human body and good health interests me very much. Sometimes find myself watching documentaries, listening to discussions or reading to advance my knowledge.
You would need to keep seeking a competent doctor for cure, whether by naturopathic means or scientifically and maybe both.

From a spiritual view, it is always recommended to be positive, keep a peaceful mind and have strong faith that either the sickness will get better someday or the physical illness can be an act of mercy. The secrets of the soul can truly be known only by Allah, hence developing a beautiful relationship.

Changing diet and lifestyles suitably is always increasingly good for our welfare and overall well-being. Also, giving in charity and keeping away from harming others. It could be easy to get frustrated when treated wrongly for something beyond your control so I will also recommend some measure of counseling to learn how to understand negative energy and channel it usefully, through mediation practices. The effects of fasting on our body and soul is always positive and encouraged. Hence, other than Ramadan, there is intermittent fasting, the sunnah fasts of Mondays and Thursdays. Source

Change diet- switching to a more vegan diet or part-time vegan diet especially for a woman there has been studies to show that it helps with hormones and better smell. Increase your intake of fruits and vegetables, even white fish. Source But avoid red meats, refined sugar and caffeine, garlic in huge amounts.

Detox - Increase natural exercises, hot baths/spas, body brushing and teas.


Other tips and advises


Hadith: "Make use of the two cures: honey and the Qur'an" [Ibn Majah and others]

Further suggested Islamic healing look into example cupping as a treatment and black seed oil but of course only find reliable means and advises on how these should be done. You can do some more reading and research from this book: Healing with the medicine of the prophet by Imam Ibn Qayyim Al-Jauziyah